We are a grassroots parent-led initiative dedicated to protecting children with uncontrolled Epilepsy in Ontario schools. Join us in ensuring safe, supported learning for every child
PPM 161 was an important first step in recognizing the needs of students with Epilepsy, but for children like Charlie, it is not enough. Medically fragile students still face gaps in supervision and enforceable policies. Boards interpret the guidance differently, leaving families to fight alone for their child’s safety.
We are advocating for specific, enforceable changes to PPM 161 that can be implemented quickly to protect children like Charlie:
PHASE 1:
Phase 2 considerations (longer-term planning):
Staff training in seizure response, emergency medication, CPR/First Aid, AED use is critical for safety, but implementing it may require broader coordination and planning with school boards. Funding for supervision and staff training is also a longer-term consideration to ensure sustainable protections.
These changes are about more than Charlie — they are about protecting every child with epilepsy and preventing tragedies like what happend to Landyn Ferris, who died after being left in a sensory room. This should of never of happened. Safe at School Ontario is committed to action, accountability, and safety.
At Safe at School Ontario, we are committed to protecting students with uncontrolled Epilepsy. Our goal is to ensure proper supervision and enforceable safeguards in schools across Ontario
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